So, I'm approaching June 21st - that marks a YEAR since my grand mal seizure!!!! That shows that the medication has been working like it should - and I have virtually NO side effects from it (except for the occasional vertigo, but that comes and goes with fatigue, caffeine intake, and heat). I feel like there should be some kind of celebration - I'm looking forward to that day which not only marks a year since my last seizure, but also my six month anniversary with my husband! Wow - that's a HUGE day in the life of me. Perhaps you'll have a glass of wine to celebrate with me....
Anyway, I was thinking about something today which I've only touched on briefly in prior posts. I now have a full time job, doing strenuous, physical activities (no more sitting behind a desk for me!!!!), and since I foresee being with this job for awhile, I've wondered recently, should I tell them I'm epileptic, just in case? That's a big JUST, though, since my medication is working beautifully and I'm not expecting to have a seizure on the job, but, it's sort of difficult to pinpoint whether or not I really have anything to worry about. See, it all goes back to redefining normal. COULD I have a seizure under these working circumstances (i.e lots of time in the heat, lots of walking, lots of stress)? Since I've never had a job quite like this one before, it's hard to know if I'm vulnerable or not, and a job like this is supposed to make the average person fatigued - it really is quite strenuous. Sometimes I get really tired and I have to wonder, is it my medication that's making me tired, the heat, or the standing around for hours with nothing to do that sometimes happens in the early hours of the day? I think any of these things could cause someone to get fatigued, but I also have medication to factor into the equation, and one the side effects is drowsiness. However, I tend to believe that I'm already accustomed to these side effects and my body has fully adjusted.
I just don't know if I need to sit down with a manager and explain that I have a history of seizures - especially if it's been almost a year since my last one. At the same time, though, I can't foresee the future, and there's no telling what lies ahead for me - perhaps all the fatigue will get to me one day, especially if I'm ill, and I could potentially have another seizure. Also, when hormone levels change drastically, that could lower my seizure threshold and I could have one then. So, it seems like it would be a good thing to at least give a manager that I'm comfortable with a heads up - but I can't help but wonder if they'll worry about my ability to handle the job if I let them know. I guess we'll find out.
Anyway, that's all I have today. I haven't written in awhile, so I thought I'd take some time to jot down my thoughts.
Tuesday, May 12, 2009
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